Urodynamics – Nothing fun.
Family and friends,
We just wanted to update you on what is going on this week with Riley. First of all, we could really use prayers, as these tests are painful and scary for him (and us). We won’t go into true details but one of the tests is an injection in his arm, wait 2 hours, then strap him to the X-ray table to get video and images. This test is on Wednesday (tomorrow) and is called a renal scan to check the actual function of each kidney. The last test this week is the urodynamics on Friday. These tests the bladders function and, again, reflux into the kidneys. For this test, they insert a catheter into his uretur while Riley is strapped down to the X-ray table, fill his bladder with dye until it is a little over stretched, and then watch him urinate by taking video and images. This test takes about ½ hour on the table not including prep time.
There is an MRI of the spine to come, but we haven’t made the appointment yet.
Todd and I need prayers of strength, as we have to watch this and Riley does not understand why we would strap him down and “hurt” him. We can’t break down in front of him. Please pray that we have the strength we need and that Riley can come out of this entire journey ahead of him still, unharmed (emotionally, mostly). Also, for his siblings to find understanding, as all they know is that Riley hurts when he’s in the hospital. They just know this, we don’t tell them that but he does come home not feeling well at all (children are very smart!). Caleb told us the other night, “I don’t want Riley to have to hurt.” And Isabella was worried as well, saying, “Please don’t bring Riley back to the hospital.” Noah said, “Please don’t go to the hospital every day! I really miss you when you are gone all the time! And I don’t want Riley to be there!” So, it is affecting our whole family. Please pray that we find the right things to do and say and so that it may be possible for us to balance life at home and in the hospital once surgery is scheduled (they will schedule surgery after Friday’s test is complete).
Thank you very much again for all of your spiritual support (and otherwise). Thank you to those who have never given up on us!
With Love,
Todd, Danielle and the Paterek family
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